There is a TON of information to share and I am slowly building this up. Have a question? Contact us and we will make getting the answer up on the site a priority.


Being listed for transplant occurs after an evaluation period at a transplant center. Once the team determines you are stable enough and meet all of the rigorous criteria you are listed for transplant. Transplant is the last resort and a large undertaking. What most patients don’t realize is it is a trade off and not necessarily a fix. Living with a compromised immune system and side effects of medications become a life long battle. But for many people it is the only option.


Status 7 is still being listed for transplant but on hold. Maintaining Status 7 criteria means when the day comes and transplant is needed the patient can be quickly moved to active status and be considered to receive organs.


Finding a match entails finding organs that are compatible with blood type and antibodies.  The organs are measured to ensure that they will fit inside the recipient torso. They are reviewed for condition and functionality by transplant experts. They are tested for antibodies and likely hood of either the recipient body rejecting the organ, or the other way around. The organs can actually reject the recipient.


Intestinal transplant is one of the rare transplant types and is prone to higher rates of complications then many other transplants. There are several kinds of intestinal transplant. Isolated small bowel includes a solo small intestine. Modified multi-visceral, what I would need, includes a stomach, pancreas, duedom, and small bowel.

A video from transplant team. Great detailed information for those who are interested:

More information coming soon!

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